February 3, 2023

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Regis Feitosa | Brazil | A drama about a man who lost 3 children to a rare hereditary disease Li-Fraumeni syndrome | Story | EC Stories | the world

In An economist lost three of his children within a span of 5 years due to an inherited disease. Regis Feitosa, 52, whose story is turning the continent.

Fidoza She told BBC News Brazil that she and her children were diagnosed with the disease in 2016 Li-Fraumeni syndromeA rare disorder that increases risk of developing several types of cancer, According to the National Cancer Institute.

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“The results showed that I had a genetic mutation that unfortunately was passed on to my children. That it promotes the appearance of cancer (…) In four and a half years I lost all my children… I am a victim like them,” he commented.

Before her first cancer diagnosis, Regis says she and her children were healthy and her family had no health problems. In 2009 his eldest daughter Anna Karolina Feitosa was diagnosed with acute lymphocytic leukemia.

He battled the disease for years, but in 2021 they found a tumor in his brain and he died on November 19 at the age of 25.

In 2017, his youngest daughter, Beatrice Feitosa, was also diagnosed with acute lymphocytic leukemia. So she underwent a bone marrow transplant. However, the cancer was so aggressive that the girl died on June 24, 2018 at the age of 10.

Later, his middle son, Pedro, was diagnosed at age 17 with osteosarcoma, a common cancer that forms in the bones.. The young man underwent several treatments, however, he developed brain cancer in 2019 and died on November 30, 2020 at the age of 22.

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The disease was inherited from his father

Régis Feitosa told national media that he was first diagnosed with cancer in 2009. Aware of this situation, she had her children undergo genetic testing.

When the results came back, the family discovered they had Lyframani syndrome. “The results show that I have a genetic mutation that unfortunately has been passed on to my children and that increases the risk of cancer,” she explained.

For his part, Regis learned in 2021 that he had non-Hodgkin’s lymphoma, a disease in which malignant cells, cancerous, develop in the lymph system. So far, the man is being treated for chronic leukemia and non-Hodgkin’s lymphoma.

“I am a victim like them”

The economist told national media that she never felt guilty about having the syndrome or passing it on to her children. “My children said I was as much a victim as they were,” she commented.

He also said that all the health problems his family faced changed the way he looked at life. “My view today is that you should live seriously, with maximum happiness. My son said a very coherent phrase: no one can measure the pain of another. I don’t think it’s a big or small problem, the truth is that we can’t measure the pain of another,” he said.